2022 Rare Disease Day: A Day in the Life

To raise awareness, money for research, and money for support Dr. Alexandra Borst and Dr. Denise Adams from Children's Hospital of Philadelphia (CHOP) will simulate conditions to experience the life of a K-T person for 24 hours. Results will be available on Rare Disease Day.


This is a stand-alone fundraiser by Catherine Pinkerton and the doctors. Proceeds from the DONATE button on THIS PAGE ONLY support CaNVAS, the first ever consortium for vascular anomalies and K-T Support Group.


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Page last updated October 23, 2021