Cancer Survey for ALL CLVM patients

UPDATE: SURVEY COMPLETE!! THANK YOU FOR YOUR PARTICIPATION

The IRB for this study is closed. Check back for the journal paper!

Please help us gather information

The incidence of cancer and conditions in the K-T phenotype have never been studied.  Results and conclusions from this IRB approved survey will be published in a journal and also accessible to members. 

The USA and Non-USA surveys are the same but please make sure you select the button that represents your location.

Thank you!! 

Page last updated July 3, 2018