Teen Space

A New Communication Link for Teens

If you are 13-21 check out our new community for K-T and Parkes Weber.

Report COVID-19 in K-T

SECURE-VA Registry for Vascular Anomalies

This anonymous registry is for physician to report international cases of COVID-19 in vascular anomalies patients.

COVID-19 Questions and Answers

VAC Medical Advisors Answer COVID-19 Questions Updated July 7, 2020

Find answers to your COVID-19 questions.

Research

VACOM - Vascular Anomalies Communication Research

Get your voice heard! K-T Support Group funded research into communications between doctors and patients in our community

Research

VACOM Webinar

Join us June 26, 2021 1:00 PM EDT to learn about VACOM, research about identifying ways to improve communications with the medical community

Highlights from 2018 K-T Support Group Conference

Click here for conference photo album

K-T Place

Check our Bonfire store!

Now available - support our efforts while raising awareness with an item from K-T Place!

Webinar

Webinar: Skin Issues in Vascular Malformations

Dr. Megha Tollefson's informative webinar discussing both rare and common skin problems in vascular anomalies patients.

Webinar

Webinar: Understanding Coagulopathy in Vascular Anomalies

Dr. Denise Adams discusses coagulopathy in the first in our jointly produced series of webinars.

Resources

Clinical Practice Guidelines for Klippel-Trenaunay Syndrome

A handy printable guide detailing Boston Children's Hospital's protocol for treating K-T patients.