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K-T Support Group

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Support and resources for people with
Klippel-Trenaunay Syndrome and related conditions.

from our member album: 2016 Rochester Meeting

Psst! It's time for dates!

2024 K-T Support Group conference dates

Mark JULY 19-20, 2024 on your calendars now! If you would like a preview, click here to watch the 2022 Art Show or log in and check the 2022 Physician Presentations!

Teen Space

A New Communication Link for Teens

If you are 13-21 check out our new community for K-T and Parkes Weber. BEST group online!

Report COVID-19 in K-T

SECURE-VA Registry for Vascular Anomalies

This anonymous registry is for physician to report international cases of COVID-19 in vascular anomalies patients.

K-T Place

Check our Bonfire store! NEW 2023 Shirts

Now available - support our efforts while raising awareness with an item from K-T Place!

Resources

Clinical Practice Guidelines for Klippel-Trenaunay Syndrome

A handy printable guide detailing Boston Children's Hospital's protocol for treating K-T patients.

Webinar

Webinar: Skin Issues in Vascular Malformations

Dr. Megha Tollefson's informative webinar discussing both rare and common skin problems in vascular anomalies patients.

Webinar

Webinar: Understanding Coagulopathy in Vascular Anomalies

Dr. Denise Adams discusses coagulopathy in the first in our jointly produced series of webinars.

Highlights from 2018 K-T Support Group Conference

Click here for conference photo album

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K-T Support Group

1554 Deerwoods Dr., Milford, OH 45150 USA
[email protected]
@KTSupportGroup

Resources

  • Klippel-Trenaunay Syndrome Management Guidelines
  • Individuals with Disabilities Education Act, Section 504, and Americans with Disabilities Act
  • Medicaid, Medicare and Affordable Health Care
  • Disability and Employment Resources
  • Simon-Politzer Scholarship
  • Helpful Links
  • Rochester, MN Mayo Clinic: Helpful Travel Information
  • Physicians

About K-T

  • Klippel-Trenaunay Syndrome
  • Similar Conditions
  • Management Overview
  • Management: Clotting
  • Management: Lymphatic Malformations and Lymphedema
  • Glossary of Frequently Used Terms

Meeting

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