Consortiums and Research

The Consortium of iNvestigators of Vascular AnomalieS (CaNVASThe Consortium of iNvestigators of Vascular AnomalieS (CaNVAS) is a multi-institutional research consortium founded by a group of Pediatric Hematologist/Oncologists and patient advocacy groups to address the rare nature of vascular anomalies and the paucity of prospective multi-centered research in this field, particularly as it relates to novel therapies and outcome studies. The consortium launched in May 2021. K-T Support Group is a proud member supporting the work of CaNVAS.

COSY - Cure Overgrowth Syndromes

COZY is a joint initiative originating in France consisting of both academic and private companies combining skills to offer innovative tools in physiopathology, genetics, imaging and reorganization of care.

COSY's aim is to define a new standard of care and offer a unique multidisciplinary service platform dedicated to patients with overgrowth syndromes.

Page last updated May 13, 2021