February 25th, 2010 . Posted in Biennial Meeting, Front Page | No Comments »
Online Registration
(An Adobe Reader file)
The Klippel Trenaunay Support Group
is pleased to host
Dr. Keith Hoots
Senior Advisor to the Director in the
Division of Blood Diseases and Resources
National Institute of Health
Dr. Denise Adams
Cincinnati Childrens Hospital
Inpatient Clinical Director, Division of Hematology/Oncology
Medical Director, Comprehensive Hemangioma and Vascular Malformation Clinic
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&
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A panel of physicians from
Vascular Malformation Clinic at the Gonda Vascular Center
Rochester, Minnesota
beginning at 1:00 P.M.
Friday, July 23, 2010
Saturday’s meeting featuring
Carla Sosenko
author of Marie Claire article
“What the Guys I Date Don’t Know”
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begins Saturday July 24, 2010 at 9:00 A.M.
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at the Clarion Inn (formerly Holiday Inn South)
Rochester, Minnesota
Also scheduled:
Poolside Member Networking Opportunities
Physician Presentations
Member Panel Discussion
Rountable Discussions
New this year: Teen led activities for youth
and much more – check back here for updates
February 25th, 2010 . Posted in Front Page | No Comments »
The Klippel-Trenaunay Support Group was founded in 1986. We welcome patients and their families as members and provide information about the group and about Klippel-Trenaunay Syndrome. We provide families, adults with K-T, and professionals with links to information and opportunities to learn from each other. K-T Support Group activities include bi-annual meetings of patients and their families (with medical advisors available to those who wish it) and maintaining a confidential group roster (distributed only to group members). A periodic newsletter of shared experiences is distributed. Campaigns to seek out new members and to make the medical community aware of the group are undertaken, as are distribution of literature and information to members and the medical community. Pertinent medical literature related to K-T is shared. Phone support among members is available. Membership privacy is respected.
The K-T Support Group encourages contributions from members and others interested in Klippel-Trenaunay Syndrome. All activities are funded by and dependent upon these contributions which are the Group’s sole means of financial support. Donations are greatly appreciated and put to maximum use in furthering support and informational services. No one is refused admission to the Group for financial reasons, however.
Affiliations and Tax Status
The K-T Support Group is an Associate member of the National Organization of Rare Disorders (NORD). The K-T Support Group has received notification from the Internal Revenue Service of official status as a non-profit, tax-exempt organization. This means that any gifts or contributions made from the date of incorporation (August 31,1998) will qualify as contributions to a tax exempt organization (i.e a Section 501 (c) (3) organization) for federal income tax purposes.).
Networking
As a service to members, we maintain an email discussion group. To request information about joining either the discussion group or the K-T Support Group, please click here to contact the Information Coordinator. If you are not currently a member of the K-T Support Group, please indicate that you would like information about joining the Group and about joining the Mailing List.
Network with us on Facebook! To participate at our Facebook site, KT.org, send a request to support@k-t.org.
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